Im sorry I didnt' update after our Neurosurgeons appointment. It went OK. The Dr. doesn't think the Chiari Malformation is causing any problems for Jase. That really caught me off guard. I thought for sure it was. Some of the symptoms are mobility issues for the lower half of body, low muscle tone, sleep apnea, voice issues, to name a few and Jase has all of those. He also said that there is probably no spinal issues. His theory is that since Jase is globally delayed, that this isnt' the cause. It is something else. The geneticist and neurologist need to figure it out. He said that he doesn't have hydrocephalus. Huh? Im so confused, the radiologist said he did....oh whatever. So no new developments there, and while I am glad there is no brain surgery, I just wish I knew more.
Jases new Gait Trainer
I have been so excited to get Jases new gait trainer. I can tell he wants to be mobile so bad. When he sees all the friends run through the house, his legs start to kick and starts grunting. He wants to play so bad! Jase loves to race Jordan from the couch into the kitchen. The bad part is, I have to carry him and race for him, as he kicks his legs. Those types of things tell me he understands more than I think he can. He is also leaning and looking for the basement to go and play. So I just knew he would be so excited and happy to be able to be more independent. As you can see, he was loving being one of the boys!
We are heading in tomorrow to have another hearing test. Friday Jase is going in to have tonsils and Adenoids removed, and a Bronchoscopy. (not really sure what that is :) He will stay overnight just for monitoring. We are removing the tonsils and Adenoids because they are growing rapidly and we think that is what is causing the Sleep Apnea. Im sure all will go just fine and we may get to now ditch the oxygen at night.
Overall Jase is doing so good, and is improving in many areas. Thanks for checking :)
